Stroke

There is no magic bullet cure for stroke.

“Grant me the serenity to accept the things I cannot change, courage to change the things, I can and wisdom to know the difference”

~ Serenity Prayer, Rheinhold Neiber

Following my stroke just over a year ago, at first I was very much in denial about how this disability was going to affect me– I was, going to be 100% recovered, and yes, I was still going on the trip to Europe that was already scheduled for October 2016 with my husband Owen, and friends. During the months post stroke all the hard work of rehab physio saw me making steady gains, then around 6 -7 months things slowly started to plateau. Owen and I had many a discussion around my ability to walk (without canes) a distance, amongst hoards of tourists … even as late as two weeks prior to leaving he was still questioning how we could possibly go? This just made me even more determined, and sure enough we took the trip… (I also took my walking poles). Many a day we racked up over 10,000 steps sightseeing the wonders of ancient Greece and Turkey. Despite hoards of selfie taking tourists at the Acropolis, I survived to tell the tale. The sunshine worked magic, and all the extra walking was good therapy. Good weather, good food, great company…. it really it was the best therapy.

Ephesus,Turkey, October 2016

Ephesus,Turkey, October 2016

How has my life changed in this past year? Well would you believe I’m no longer skipping to the gym at 6am….ha ha. I am super slow getting up in the morning. Getting dressed takes much longer, putting on socks and pants present quite the challenge, I’ve learned to be creative with how I fasten my bra clasp!

I struggle to use a knife to cut up my food. Owen has become a great chef de cuisine, cooking for me is quite the adventure…. chopping things with a sharp knife frankly dangerous when you have a left hand that doesn’t cooperate. Woe betide random dogs that may be lurking in the kitchen! I’ve been known to virtually concuss said pooch by virtue of spastically launching a stray can of tomatoes!

Everything just takes so much longer and requires so much more effort. If I was a grand procrastinator previously you can only imagine how much worse I am now. Medications mask my ability to be my old self.

I feel like stroke really has aged me. There are times when I feel quite frail and feeble. I get upset from time to time. There is such a sense of loss.

I recently watched the documentary: My Brain and Me, that Andrew Marr the veteran BBC journalist has made about his recovery from stroke. In it Marr talks about how it’s the small things that accumulate and make life a bit crappier than it otherwise would be. It describes in a nutshell how I feel.

I am a different person than I was a year ago, stroke has changed me, and as a changed person living with the consequences of stroke share and reinterpret stroke in the context of my life experiences, personality and character.

As this year has progressed Ive learned that whilst others can support you, you have to become your own expert on stroke.

Despite the consequences of stroke I have not given in, nor given up control of my life. Rather I have started to find a balance between acceptance and change.

We all want to believe when we have a problem in our lives , there is someone or something out there that can fix it. As I read back on my posts this past year… this is very much the recurring theme in my story.

but…

There is no magic bullet cure for stroke.

Thinking outside the box

They always say time changes things

But you have to change them yourself

Andy Warhol

 

Kathy James in the pinkI am taking the action to change my mind, I have a choice, it is my body…. I am the one in control,  I can regain function. There is no magic pill that can transport me back to how things were before my stroke happened.

Before my stroke movement was  not something I really paid much heed to, oh sure I exercised and worked on my fitness but, for example, I could lift my arm without much  thought,  because well it just happened didn’t it?  Just like babies and toddlers do, I can relearn the basics of movement, all over again, and retrain my body/brain connection. Thanks to neuroplasticity I have an opportunity  to alter the neuro – circuitry of my brain. 

One of the most important components of recovery is patience.  I wish I  could in all honesty espouse this virtue in spades, but  I am human and have  melt down days. Days when frustration trumps triumph. 

Its been  one of those times. The past few days have been a struggle. I started NeuroMovement® for Healthy Necks and Shoulders with enthusiasm, only to struggle with lesson 4. The pain in my shoulder is my brain overwhelmed, too preoccupied to  be able to move through sequences, and it  is  same with lesson 5 . I practise the visualization, but feel ultimately a sense of disappointment.. I get very excited when I start something new. Eager for immediate results….. and now I realize   I am missing a vital point of this program.  Go slow . Its not a rush.  Time to regroup.

Those who know me well  are aware that prior to my stroke a big part of my fitness regime was The Tracy Anderson Method. Over  the past 5 years patrons of my local gym got used to my daily workout which incorporated 30 minutes of dance  cardio…. Crazy old bird dancing! Ha ha! Today I would like to share this Ted Talk video by Dr. Jaquin Farias, after watching this talk today, I am thinking its time to re-introduce dance to my exercise regime TAMily  🙂

* I want to caution anyone reading my account, that I am no medical expert, I am writing this as a personal account of how stroke has affected me, and it’s my journey of recovery.

depressed woman

People who are depressed after a stroke may have a tripled risk of dying early and four times the risk of death from stroke than people who have not experienced a stroke or depression.

 

“Up to one in three people who have a stroke develop depression,” says study author Amytis Towfighi, assistant professor of neurology at the Keck School of Medicine at the University of Southern California (USC). “This is something family members can help watch for that could potentially save their loved one.”

Similar associations have been found regarding depression and heart attack, but less is known about the association between stroke, depression, and death, says Towfighi.

The research included 10,550 people between the ages of 25 and 74 followed for 21 years. Of those, 73 had a stroke but did not develop depression; 48 had stroke and depression; 8,138 did not have a stroke or depression and 2,291 did not have a stroke but had depression.

After considering factors such as age, gender, race, education, income level, and marital status, the risk of dying from any cause was three times higher in individuals who had stroke and depression compared to those who had not had a stroke and were not depressed.

The risk of dying from stroke was four times higher among those who had a stroke and were depressed compared to people who had not had a stroke and were not depressed.

“Our research highlights the importance of screening for and treating depression in people who have experienced a stroke,” says Towfighi. “Given how common depression is after stroke, and the potential consequences of having depression, looking for signs and symptoms and addressing them may be key.”

The findings will be presented at the American Academy of Neurology’s 65th Annual Meeting in San Diego, March 16 to 23.

USC
 
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Poststroke depression

depressed woman

Image: istockphoto

Several weeks after mild brain ischemia, mice display a depressive-like syndrome characterized by increased anxiety, inactivity and “cheerlessness”. These symptoms of depression following a stroke are associated with the delayed loss of nerve cells in the brain’s reward regions. This is the major finding of a study published in the current issue of Biological Psychiatry.

Scientists at Charité – Universitätsmedizin Berlin collaborating with researchers from Bochum, Magdeburg and Boston were able to show that delayed treatment of laboratory mice with cipramil, an antidepressant of the selective serotonin reuptake inhibitor (SSRI) family, not only prevented the development of depression, but also attenuated the subacute degeneration of nerve cells in the brain’s reward system after stroke. At the same time, the area in the brain directly affected by the stroke turned out to be smaller in those mice which had received the antidepressant. “These results indicate that antidepressants from the SSRI group protect nerve cells. This effect can also be harnessed even when medication is started days after the stroke,” explains psychiatrist Prof. Golo Kronenberg, who works on the subject of “Depression after Stroke” at the Center for Stroke Research Berlin (CSB) at Charité. [continue reading…]